Summer 2015 – ahhhh….
Let’s start by going back to a post I did a few weeks ago, wherein
Friends With FOP
Let’s start by going back to a post I did a few weeks ago, wherein
When you become a parent of a child with special needs, there’s a whole lot
As I’ve said about a gazillion times on this blog, the thing I want more
My daughter is now a pre-teen. I guess that starts around age 9, and she’s
Every year I really looking forward to reading the annual report of the Fibrodysplasia Ossificans
I am unbelievably tired right now – but I guess staying up ALL NIGHT will
Today is Mother’s Day, which explains why I’m a bit later than usual at writing
As you may know, there is currently neither a cure nor a consistently effective treatment
Last night my husband and I went to the 6th annual “Rare Finds” fundraiser event
Eight years ago today, everything changed for our family. That was the day we found