Summer 2015 – ahhhh….
Let’s start by going back to a post I did a few weeks ago, wherein
What’s an IEP?
When you become a parent of a child with special needs, there’s a whole lot
What is a “natural history study”?
As I’ve said about a gazillion times on this blog, the thing I want more
Independence
My daughter is now a pre-teen. I guess that starts around age 9, and she’s
Research, and pushing for more of it
Every year I really looking forward to reading the annual report of the Fibrodysplasia Ossificans
Sleepover with the Girl Guides
I am unbelievably tired right now – but I guess staying up ALL NIGHT will
Mother’s Day for moms of kids with FOP (and other special needs)
Today is Mother’s Day, which explains why I’m a bit later than usual at writing
Treatment vs. cure? We’ll take either…
As you may know, there is currently neither a cure nor a consistently effective treatment
Rare Finds, a fabulous gala
Last night my husband and I went to the 6th annual “Rare Finds” fundraiser event
8th anniversary of FOP in our world
Eight years ago today, everything changed for our family. That was the day we found